0
잠시만 기다려 주세요. 로딩중입니다.

20대 혈우병 환자들의 심리사회적 적응: 정상인처럼 살아가기

 Psychosocial Adjustment of Young Adult to Hemophilia: Living like a Normal Person

Journal of Korean Academy of Nursing 2003년 33권 7호 p.875 ~ 884
KMID : 0806120030330070875
이명선/Yi MS
김원옥/강현숙/Kim WO/Kang HS

Abstract

Purpose: To explore how young adults in their 20s adjust to hemophilia.

Method: Grounded theory method guided the data collection and analysis. A purposeful sample of 15 young adults with hemophilia participated during the period of 2000-2001. The data were collected by semi-structured individual interviews, focus group interviews, and participant observations. All interviews were audio taped and transcribed verbatim. Constant comparative analysis was employed to analyze the data.

Result: "Living like a normal person" emerged as the basic social-psychological process. Two dimensions of the self were identified: normal self and abnormal self. "Living like a normal person" means conscious effort to focus on normal self rather than abnormal self. Five subcategories were identified : 1) pretending as if he is not
hemophiliac; 2) relieving the burden; 3) maintaining best physical conditions; 4) becoming independent; and 5) reconciliating with their mothers.

Conclusion: The results of this study indicate that young adults with hemophilia strive for living a life as a normal person. But there is a question whether it is good for their ultimate quality of life. The results indicate that our society needs to be more tolerant to differences that hemophiliacs have.
KeyWords
혈우병, 사회적 적응(Hemophilia, Social adjustment)
원문 및 링크아웃 정보
 
등재저널 정보
SCI(E) MEDLINE 학술진흥재단(KCI) KoreaMed